Thank you for all of the many prayers sent up for Miss Paige in the last day! We felt them and they are appreciated. We got up early today and I have to say that Miss P. woke up as sassy as ever. My mom and I were/are nervous wrecks, but tried hard not to let it show. We got to Vanderbilt's Eye Institute early and eagerly awaited the appointment. Unfortunately, the news isn't as good as we had hoped. While we thought that she may have a cataract and were scared that's what it is, turns out that would have been the better scenario. Paige has massive scarring on her cornea. The doctor said that a cataract could have at least been removed. The extensive scarring was probably created by trauma at birth or a bacterial infection that went untreated as a baby. Since we didn't adopt Paige until she was 2.5, he said the damage had already been created. As for the cloudiness, there is something that is causing it to come to fruition now and that is what is in question.
We go back to another and more specific cornea specialist at the end of this month to determine what is the cause for the cloudiness in her eye. The doctor today proclaimed that she is legally blind in her eye and that he didn't know if it would be worth doing a transplant. That is what we are going to discuss with the specialist. He also couldn't 100% rule out cancer of the eye either. While he said he really doesn't think that is it, he wants to send her to "the best of the best" to make sure. Her good eye makes up for the bad eye and he said it has been doing all of the work all of these years and that is why she hasn't ever said anything about not being able to see...she just didn't know any better.
SO, please keep those prayers coming. We need them!
Good news, Miss Thang got some serious styling glasses! They will be ready in a week. Bad news (so she says), she has to wear them at all times (except for at dance and swimming). They are not exactly for vision, as the good eye is 20/40, but rather for protection for the good eye, as it is her only functioning eye.
I haven't posted pics of my girly in forever, so please oblige me a few...ummm, well... a lot!
Sweet girl on New Year's Eve
Playing with Tabitha, our cat
Rock on, sista!
Cutie pie!
Peace!
She might be 10, but she isn't too big to bring her AG doll to the doctor with her for
comfort!
Tonggu Momma...this one's for you : )
Brave girl!
She had just had her eyes dilated and the doctor said
she had to wear these while outside...do you think she looks happy? : )
Taking our girl out for lunch downtown for her favorite Chinese food
at yummy Golden Coast!
We stopped at Toys R Us for a little treat at the end of the day.
"I don't wanna grow up, I'm a Toys R Us kid"
32 comments:
Oh boy...not the news we all prayed for...but I am SO glad Paige is getting such fine medical care and that she has such a loving family. Paige looks as beautiful as ever (except with the big black glasses...but really...who DOES love those???). I will continue to pray and hope for a good outcome despite the final findings.
Best wishes,
Kate
Well... crud. Not what we prayed for. Still, Vanderbilt is one of the best in the nation. Thank God for that. And tell Paige that being a four-eyes is not so bad. I'm one!!!
I have been waiting for the update....
I am sorry that the news was not as good as we had hoped for, but it does sound like she is in EXCELLENT hands!!
God love her, she is so cute and Sassy and even let you get take some pics during the dreaded appt....she is such a beautiful girl....on the inside and out!!
Sending prayers and hugs your way,
Lisa
Hi Missy,
I'm so sorry about the loss of vision in Paige's eye. I know it's news no one ever wants to hear. My twin sister lost her vision in her right eye at age 9 due to an accident. I know so well, how you are feeling for that loss of sight. Saftey glasses are a must. I'm sure she will have the cutest pair of glasses too.
How wonderful that you have the best of the best eye doctors right in your backyard.
I'll be keeping you all in my prayers.
Oh Missy...no this is not the answer I had prayed for either BUT I know God has His hand on Paige. I know you have told me that you have had trouble giving the Lord your worries. This is the time to go to His altar on your knees and let Him have control. I love you Missy and anything...anything...anything I can do for you and your family you just call. 214-551-3017 (my cell)
Big Hugs....XXXOOO
Missy,
I have been thinking of you and Paige since the moment I woke up. So sorry that the news what not what we had hoped or prayed for.
But...How wonderful for Paige to have the comfort of big sister, Mom and AG on a scary day like today!! And what a blessing to know that she will be in one of the best medical hospitals.
She looks absolutely darling in all the pictures! I love her style. She reminds me of the cute outfits that the 2 Two Chickadees wear and I always admire.
Keeping you in my thoughts and prayers,
Your friend, Sylvia
Thanks for the update Missy, you've had a full day. Paige will continue to be in my prayers. I'm very, very hopeful that the next step and outcome will be a positive one.
Please take care of yourself. And if you want me to do some research I'd be happy to also.
hugs,
Gail
Missy, I'm really sorry that the news wasn't better. (hugs!) But thank heavens that Paige can get "the best of the best" to treat her eye. And thank heavens she has such a loving and supportive mother and sister to hold her hand through all this.
Sorry the news wasn't better, but it sure sounds like the docs are taking good care of her and doing everything they can -- so that's good! Great photos of your beautiful sister! Will keep you all in my prayers.
Janet
Aww mannnnn, as Hannah would say...okay, so we need to be on our knees and that's okay. God is going to reveal something really good through this. Eye issue or not, your sweet girl rocks and we all just love her (and you and your family).
It will be okay and we will pray you through this. Missy, my favorite scripture in times of struggle or worry is, "For I am the Lord, your God, who takes hold of your right hand, and says to you, "Do not fear; I will help you."Isaiah 41:13 -- pure and simple.
The pictures are awesome as usual, could she please have a bad hair day or bad outfit day once in a while?? Nah, I don't think Paige is capable of that:)
Love, Hugs and tons of encouragement!
Heather
Not the best news, but now you know! Ya know, Jade has been wearing glasses since she was 4 (she's 7 now) . . .she doesn't mind them a bit.
Will keep you all in our prayers.
{{{{hugs}}}
Oh Missy,
I am so sorry to hear that you didn't get the news that you had hoped and prayed for. I will continue to pray for your beautiful little sister of yours. Please keep us posted.
Hugs to you,
Michelle
Thanks for the update. Sorry you didn't get better news, however, it sounds like Paige is getting the best medical care possible.
Love the new pictures too!
Love the pictures-she is beautiful.
Missy,
Thanks for the update. I was thinking of Paige all day. Sounds like you are getting her the best treatment possible. She looks so beautiful in all the photos. I will continue to keeping you and you family in my thoughts and prayers.
Can't wait to see the stylish glasses!
Jen
I'm so sorry y'all are having to go through this Missy. Thank God she's got great doctors and such a wonderful caring family backing her up. Can't wait to see the glasses, I'm sure she'll look fab!
Love the pictures, she is so beautiful!
So sorry that this news is not what we had all been hoping and praying for. Sounds like progress is being made however, and knowing God, He has his hands in this deeper than we all know.
Miss Paige is looking cute as ever (I am LOVING the outfits!!) and I cannot wait to see her in her new specs!
Hugs and prayers to all of you!
Jill
Hi Missy -
Just catching up and so sorry to hear about Paige. I will keep you all in my prayers and hope for the best. I am glad you are getting such good care at Vanderbilt.Hang in there and know that I am thinking of you!
Oh Missy- we have been thinking and praying for Paige today (and always). I am sorry that you did not receive better news. This is so shocking and I can imagine that you are all emotionally drained. But it appears that little miss thing will be getting the very best medical care and I so hope that the glasses will help and protect her vision.
Please let me know if you need anything.
Love,
Kerry
Nuts! I too was hoping for something better. Good care...and with that and medical advancements...who's to say? We go through all of the "eye stuff" with my dad who has glaucoma and I'm pre-glaucomic. It's amazing the research that's being done on eyes!!
As for glasses...she'll be seriously adorable!
Take care :)
Kelly
I am so sorry the results were not what you were hoping for. Continued prayers for Paige. I can't wait to see that cutie in her new glasses. You got some great sassy pictures!
Still praying for you all. I'm sorry she (and all of you) are going through this but glad she is in good hands.
BTW, that girl has got some awesome style! And for only being 10! I was never that cool looking! :)
Darn, I was really praying for better news than that too. But you can't do better than getting "the best of the best" for opinions and care. Keeping you all in our prayers on this issue.
As for the pictures....OMG she is just too beautiful! I absolutely love the 3rd picture! Rock on indeed! Hugs to you both!:)
Big hugs and lots of prayers sent your way!!! I'm so thankful she is getting the best care. She is such a remarkable young girl!!!
I am writing this with a heavier heart..
Not the news we hoped for at all, we will lift you, Paige and your Mom in prayer.I am so glad she will be seeing the best of the best.
Hugs...
Sending up ((LOTS)) of prayers!!
I wil sure keep praying for your beautiful girl.
Oh Missy, I'm so sorry to read about this...you all must be so sick with worry about your beautiful girl. Sending prayers for Paige and your family.
What a tough thing to learn about your baby! She's such a great kid though and you know her spirit will get her through this. You were right in one of your photo titles, Paige is a brave kid! Sending prayers and hugs!
Julia
Hey Missy,
I am sorry that the news was not so good! It sounds like Paige is in excellent hands and I am glad they are being so thorough!!!
A big ((hug)) to you and your mom and Miss Paige!!! Hang in there...I know this is scary, but know God is right there along side of you....
OhMY!!! I haven't been able to check lately! I am So sorry I hadn't known to be praying unitl know! I am on it! Prayers being sent up from Bama! I love the pic of P in her grumpy glasses. Hang in there...
she looks so cute in all her Matila Jane! i just ordered my little girl the same denim ruffle pants. They are so cute!
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